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bnlred
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Registered: 07-2006
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Re: Autism Awareness Month
I totally agree. And Ciaran- what a beautiful name :)!
We actually had my son evaluated when he was about 3 for autism because he had some different, pseudo-quirky behaviors. Nothing in the true defintion, but just wanted to be sure. Turns out he is absolutely on target and what they think it was is a stress reaction to me being sick when he was little. We tried real hard to keep things normal for him during that time, but he still picked up on some of the stress and was using the strange behaviors (only at times) as ways to cope. Kids are so perceptive! Anyway, the stress decreased and the behaviors stopped and now he's just a happy go lucky kid. Without bragging, he also was trested out at above average intelligence and the developmental pediatician believes that also contributed slightly to how he acted etc. Anyway, I was relieved, but am totally empathetic to what others have to go through with autism and the complexity of the condition. It is indeed a mystery.
On a lighter note, I watched the recent eppy of "Real Sports with Bryant Gumbel" on HBO and they did a segment on therapeutic horseback riding and how it really seems to help autistic children and those afflicted with cerebal palsy. It was so amazing! The children truly seem to connect to the animals and the horses and their movement appears to help them center themselves, build core muscle strength, and for autistic children, helps them understand where they are in space through the hoofs striking the ground (they can feel the vibrations and it helps and calms them). If you are able to check it out, please do. It might be on HBO's website in a while too.
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Apr/23/2007, 9:25 am
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1lost1
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Re: Autism Awareness Month
I also read over the weekend they are having very promising breakthroughs with cartoons and helping the children understand feelings/emotions.
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Apr/23/2007, 11:06 am
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jinzleftbuttcheek
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Re: Autism Awareness Month
As you already know 1lost1, I have a 15 year old daughter who has PDD-NOS. She is also MOID.
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Apr/23/2007, 2:19 pm
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jinzleftbuttcheek
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Re: Autism Awareness Month
quote:
1lost1 wrote:
I have a question relating to Autism Awareness month. Is there a connection to Wolfram and Suzidfloosey being siblings and both having autistic children? I have wondered this since you both posted, because my knowledge in this area is limited. A friend of mine has a 19 year old nephew living with him who is autistic, he is an only child. There are several bothers and sisters in the family all but my friend have children and there are no additional children born into the family that are autistic. I was just curious as to if whose family follows the more common route of autistic trends. If that's not too personal of a question that you feel comfortable answering I am interested. If I have asked to personal of a question I am sorry. I hope I haven't though.
Each birthday for us in the family we do the standard birthday party and I also pick something to donate to on behalf of the birthday person, random and usually something happens that decides where to donation goes to shortly before the birthday, I always look for a sign prior to the big event. The boys keep their eyes out for a sign too. Alex's birthday is next, June 4th. Because I am so glad to have met you both Autism will be remembered in June. It's been a tradition that we do enjoy and one I hope they will continue with their families. I told Alex today I found his sign (I heard him upstairs showing the Orr video to his friends) I explained the meaning for the sign and he said yep, that's the sign, no need to look for others this time.
Best guess is that it is a combination of genetics's and prenatal environment. Which would make sense since it typically hits males more profoundly than females.
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Apr/23/2007, 2:24 pm
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1lost1
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Re: Autism Awareness Month
Thanks for sharing that with us jinz. Because many are unfamiliar I have found this link that will explain PDD-NOS, a bit. I do hope the information is accurate if it is not please don't hesitate to clarify or add to it.
http://info.med.yale.edu/chldstdy/autism/pddnos.html
It's very brief and to the point. I was unable to find information on MOID. Would it be possible for you to explain that just a bit?
My feelings are information that enlightens anyone is helpful. Someone might have a child at home that the information found here could apply to. If it helps one person or encourages them to have their child screened, it could mean so much, possibly opening the door for a miracle to happen.
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Apr/23/2007, 2:34 pm
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jinzleftbuttcheek
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Re: Autism Awareness Month
LOL!! I'm so used to talking to other parents who know what all these things are. PDD-NOS is Pervasive Developmental Disorder, Not Otherwise Specified. Basically, it means that she exhibits some signs of autism, but not enough for a full diagnosis of autism. It is considered one of the autism spectrum disorders. MOID is a term used by the school system. It means Moderately Intellectually Disabled. (IE her IQ is 45 but that doesn't mean squat to an autistic child. Where does the autism leave off and the MR kick in?)
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Apr/23/2007, 4:15 pm
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Wolfram749
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Re: Autism Awareness Month
Nothing like a thread like this to help spread info & ideas. Himself has been very naughty & manipulative tonight. He just decided he would push some buttons & he sure succeeded in that regard. He has been upset & angry since I had the surgery as he's not the "centre of the universe" at the moment so he kicks up a stink. :omg:
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"When you have eliminated all which is impossible, then whatever remains, however improbable, must be the truth."
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Apr/24/2007, 12:12 am
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1lost1
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Re: Autism Awareness Month
yes I am learning alot and I really do think its important.
When you have an upset like tonight, does it last for days or can things get back to the way they are in a shorter period of time? And is he able to comprehend that he isn't the center of attention and making problems on purpose or does he just know/ sense there is a change in the home and not really trying to cause an upset, it's just something out of his control? I know you said he was crafty so I am guessing he might know he is pushing buttons. That would be a difficult situation, because I imagine if you fuss at him it fuels the fire. Kind of a catch 22 of sorts.
Are there different degrees of autism where some children move from the home and are able to work and care for themselves, or will all with autism need to remain at home or with a caregiver?
And if I am asking too many questions please don't feel as if you can't say so. I am a person who honestly doesn't know enough about this and I really would like to know more.
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Apr/24/2007, 1:05 am
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Wolfram749
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Re: Autism Awareness Month
In Ciarans case he requires 24/7 watching. Whether that improves over time I've no idea. He's improved so much in so many ways but we still cannot allow him out of our sight as he'd run off(he's done that many times) & prolly do harm to himself or be harmed by someone.
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"When you have eliminated all which is impossible, then whatever remains, however improbable, must be the truth."
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Apr/24/2007, 1:19 am
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suzidfloosey
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Registered: 11-2006
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Re: Autism Awareness Month
Wow - what alot of stuff since I last looked in! No prob asking Lost. Our eldest (of 4 god help us) has Aspergers which can also be called high functioning autism. It means he can attend a mainstream school but with a huge amount of support from us and from any professionals we can manage to snare. He can have outbursts and has hit me and his teacher but in the last 6mths these have reduced due mainly to the teacher reporting him for assault to the police (yes - I know) and the child being frightened out of his mind. Still, in a way we were glad that he got the fright he did. It's hard going, he can function in groups to an extent, has 1 main friend who's a bit nutty also and is generally liked in his class. He is highly intelligent (won an all Ireland quiz last year...brag brag!) but severely socially inept so that is the dilemma and what makes things difficult. He was in bad form at the w/end so the whole house was affected. The prognosis for him is hopefully independant living but who knows, he can be knocked back by an ignorant so and so if they choose to do so and it can affect him for ages.
Re. genetics/environment etc, well I believe my bro-in-law has AS also he is so like our guy. Our Dad was reading at the age of 2 (as was our son - it can be an indication but not always) and Stevie there was a fierce bright button also, I am working in compliance so everything has to be just right....so I guess there's a lot of autistic traits right there oh yeah and our family are fairly fiery! We didn't vaccinate any of the children and they are treated homeopathically where possible (no antibiotics to date). I have some auto-immune issues which can be connected to having children with autism.....as Steve says lots of ifs and maybe's. Who knows...one thing tho' there isn't a cure despite what some websites claim but HUGE progress can be made with the right therapies...
whew - are y'all exhausted now?? :p
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Anyone who lives within their means suffers from a lack of imagination.
Oscar Wilde
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Apr/24/2007, 8:43 am
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